Wednesday, February 15, 2012

Uncle Here

Here is the deal. I have tried to be really clear in this blog about what is going on. I am in a tenuous place caught between hospice and Dr. care. I need some second opinions. I have a finite amount of energy and only me to help myself. I have to research hospice, doctors, second opinions etc. Mom can't help. Friends want to help but they can't. I have tried that and it is too exhausting.i just need to plow through this. i need to get some more info but I can't answer questions right now. I also do not feel like chatting. I am exhausted and also very busy. i have so much to do before i start feeling bad. I have gotten conflicting information that i need to sort out. It is a whole puzzle. So I probably won't be calling to chat for a bit. i have a friend coming in town. We will probably work inn some of this together Monday. i am going to try and go back to my house to stay and I have to get set up there. So i probably a not going to be answering the phone much. I am fighting for my life before i start going downhill again. I have no idea what is next. Since I can't have any more chemicals I have no idea what is next. The Dr i had wants me to deal with hospice. Hospice says i am  not ready for hospice. And for the millionth time, there are no trials for me and I doubt i want to do them because I do not want the placebo if there were any. Also the chemo almost killed me so I can't take any more chemicals because i will probably seize and die and that is what I want the second opinion about.  There are only 3 drugs for my cancer and I did them. So bear with me and give me some space. i will update but I just need to rest and work on this and I need to be left alone a little. I love all of you. Email but don't call or text. I am at a better place to deal with emails.
Thx

7 comments:

  1. Is it trite to say that I feel your mental anguish?

    When I was at my worst, I found it such an intrusion to get phone calls. Thank goodness for call waiting. I could not believe that people thought I wanted to chat. AS IF!

    Keeping you in my thoughts, Ellen.

    Sending hugs from Pennsylvania.

    JOANN

    ReplyDelete
  2. Love you Ellen - you are in my thoughts constantly. Peace.
    Peggy

    ReplyDelete
  3. Well, I hope that you can get everything the way that makes you most comfortable. Thinking of you always.
    M.

    ReplyDelete
  4. Thinking of you today and everyday!

    ReplyDelete
  5. I wish there was more I could do besides think of you and pray for your comfort and peace. If you think of anything I might could do, just name it!! Hugs. Love, Jenna

    ReplyDelete
  6. If you need help researching or anything, let me know. I am unemployed and at your disposal. Otherwise, I'll wait until I hear from you to chat.

    Love,

    Susannah

    ReplyDelete