So yesterday was weird. I went for fluids and I guess since my gyn one said go to hospice, they really are not interested in my treatment. They want me to come back for a follow up next week but I am not going. I don't need to hear what I didn't know. I also got the snarky treatment from the nurse. Fuck it.
So I got out if the hospital last wed. I have been ill. I can't hold anything down. I got fluid yesterday and will get it today and then i am going to hospice to work out the deal there. I am drinking some ginger tea I mage that is basically steeped ginger root. It is helping with my nausea and helping me not throw up so much. I am glad I discovered this recipe. But explain something to me? i have not been able to eat anything for over a month. I was on the iv food. Guess what stayed down. Pho. yes soft tendon pho. what the hell. I have tried baked potato yogurt etc. oh yeah and part of a Bahn mi sandwich. So asian it is. OSme of y'all are amused by ny weird taste but I didn't do this. I swear. I didn't keep all of to down but some and it was good.
Oh and goodby mac iPad. I got an air. life is so much better. I did not like that little gizmo.i was happier on the iPhone.
weasel, thanks for paprika! Have a great luncheon
Ok peace
I have been reading your blog since day one. I never comment because I know you have a close group of friends who write things that actually mean something to you. Why would you want to hear from someone you don’t even know, right? I like reading your blog and I learn from your blog. You have written that you blog for yourself but I often think that you write for me and for those of us who don’t know much about anything.
ReplyDeleteWell i think the blog is really for everyone and that is really what i meant. I want to get my feelings out and share with people. Comments are not just for my friends, please comment. i welcome it. or if yu have questions ask them. I love what my friends say but a lot of the people that write I did not know before and I still have not met!
ReplyDeleteEllen, what did the doctors tell you that you did not know? I don't understand what is going on. So you are now going into hospice but eating Pho and it's staying down? No more chemo but fluids? I do hate being so far away.
ReplyDeletelove you,
M.
Hi Ellen! Awesome hearing from complete strangers. It's inspiring to know that this past year you've spent chronicling this journey has meant so much to so many people, some you know, some you don't. I am sad I have not gotten to Atlanta in so long.... but again, so happy that I was able to see you last time I visited, got to share a wonderful meal, got to drive around the old neighborhood and reminisce.
ReplyDeleteThis most recent post sounds like you've gotten a little energy and spirit back, and that makes me less sad given the recent news. I am thinking of you constantly and wishing you peace in the weeks to come.
XOXOXOXOXO
Rachel
what Jennifer said. I can represent the NY version.- Linda
ReplyDeletestay strong, ellen. maybe we can collect some of the ridster's [ahem] outdoor gifts and put it on the snarky nurse's car. :) sending all healing vibes and strength vibes your way.
ReplyDeletelaura (weasel's cousin)
I see yur kids are at Trinity. I am an alum! I like that idea
ReplyDeleteI will represent the PA anti-snarky nurse crusade. And I will overnight you a Philly cheesesteak when you are up for eating. I will throw in some zofran and lomotil, too. Thinking of you!
ReplyDeleteHi, Ellen! I'm just another total stranger who reads your blog every day. You put life into perspective...it's short...don't sweat the small stuff. Thank you for making me think. I have been praying for you since I first read your blog. Thinking of you and continuing to pray for you!
ReplyDeleteMichelle from KY