Yesterday I got a second opinion from a really nice Dr. He mentioned that they are bringing Doxil back to the US. The plant in Ohio that made it shut down this summer. That drug and a chemo drug used to cure cancer in children were taken out of production. The FDA is letting the 2 drugs be brought in from Europe because it has impacted so many people. I am contemplating the Doxil but I am just not sure I have it in me to go through this right now. I am seeing an alternative Dr. that is also an MD. He studied with Andrew Weil and does eastern and western medicine. I have been doing energy work and acupuncture and I feel better. Dr. C thinks it is good from a quality of life stand point but stupid from an anything else standpoint. He can think what he wants. He was pretty clear it would not buy me any time. Whatever. My goal is to buy some time from this and Dr. Kim is wanting to do the same. He is helping me. I need to heal. i am exhausted. The steroids wiped me out form the last treatment. I have done a year of the hardest treatments there are and it has taken a toll on me. I haven't been talking to many people. I have kind of isolated myself. i only have so much energy and I am using it on myself. Feel free to email. I am emailing I just can't talk on the phone. I just don't have it in me. I mean I do talk on the phone but I can't have a long chat or answer a lot of questions etc. It is on the blog. Read the blog. Rid has been at Granny's house and he is back and i am so happy. He is so wonderful. I am so sad. I feel like i have let him down. He picked me and he is still a baby. I know he will be ok , he has Mom and Leslie but still he is my heart, and I burst in to tears when I think about leaving him. So for the nest 3 or 4 days I am going to try and rest and take it easy, get caught up my sleep and heal. Mom is going to help me do a few things around the house. Maybe I can draw. I have some ideas. My main goal is to get more food in me. I am getting liquid down ad more variety of liquid. I found some veggies that are indian and mild that Drew left for me and I am going to eat those for lunch. Hopefully that will stay down. I had a bologna sandwich stay down tonight and yet my body rejected the homemade butternut squash soup that I made. WTF? I just really can't figure my stomach out. I think most cancer diet books are designed for healthy eating for cancer but most people don't have soft tissue cancer in their abdomen. I am not sure of it is the chemo or the cancer that is impacting all this but it hasn't been this bad in very long time. Maybe since the summer. I thought it would let up. It has a little and the acupuncture helped today. I think a lot of it is what I eat, all trial and error for some reason. Anyways that is all that is going on. So feel free to email, FB, or whatever. I am not ignoring anyone just saving my energy for myself for once. AND Leslie's baby is due March 12. That is the c section date unless she goes into labor early, so..... I have to get up there and I want to be there to meet Baby "C". C is for Caulfield, it's last name. I can't wait to be an Aunt. I can't wait to meet the baby. I want to smell it. I love how babies smell.
Peace out.
So just a reminder, ask the alternative Dr. about the Iscador that Suzanne Somers took and wrote about. It's available in the states but just not everywhere. I can't tell you how furious I am that once again they have things in Europe that we don't have for cures. WTF is up with that,
ReplyDeleteWe had the cure here. The plant had to be shut down because of contamination or something. Then there is the problem with patents so luckily the same drug is being made in EUrope. It is n't a Europe has it we don't/ it was a safety thing.
ReplyDeleteWow, I didn't realize Baby C was coming so soon. I know you must be excited to meet her (we'll just assume the baby's a she for fun!). I would love to stay with you if you're up for it. I'll keep in touch this month and keep you updated. Right now I'm thinking I'll be back around the 27th or 28th. And hey, viva bologna sandwiches and hot pockets, whatever works, right? We lived off of bologna and pb&J as little kids and turned out alright. xox!
ReplyDeleteBoost makes a pudding now. Maybe you could try that for calories and nutrition. I know it is not the exotic food you normally like, but maybe worth a try. Only ten lore days until you are an Aunt. How exciting!
ReplyDeleteI love your attitude!
ReplyDeleteOh, I love how babies smell too, and their little feet and hands...do you think you'll fly up? I just friended Les today; I don't do FB much but needed to respond to some folks and well, anyway, it's her bday, too! She is the best and you are so lucky to have her for a sister. I am lucky to have you as a friend. Hope you have a good day; love you! Peggy
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